Tech for patient groups to drive research.

Advances in rare disease treatments rely on the work of patient groups. From growing organizations to educating stakeholders, we’re building the tools to help.

Co-designed with these organizations so far

    • Character
    • Maneki
    • Once Upon A Gene
    • WABS

End-to-end solutions

We're working with the community to build tools that support your patient group from kitchen table to clinical trials


Helping families discover resources they need but didn’t know existed.

A free platform to search, save, share, and contribute to resources ranging from financial support to accessibility products.

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Making academic science accessible to families, donors, and industry.

An AI-powered scientific communicator that translates academic text into helpful content for families and other stakeholders.

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Coming soon...

Patient-led data management and collaboration.

A self-governing platform for aggregating and sharing patient data where you own the commercial value you create.

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From the blog

Learn how to grow your business with our expert advice.

Let us know what you want

Try out our existing tools and tell us what we can build next to help your patient group flourish.

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